Chronic childhood vasculitis: Characterizing the individual rare diseases to improve patient outcomes - Paediatric vasculitis initiative (PedVas Study)

Research summary

The Pediatric Vasculitis Initiative (PedVas Study) is a project which aims to improve the overall quality of care and health of children with childhood vasculitis by collecting clinical data and biological samples from vasculitis patients all over the world. The initiative is coordinated by the University of British Columbia and funded by the Canadian Institutes of Health Research. In the UK the PedVas study is sponsored by the University of Oxford. The initiative will help us better understand vasculitis and develop minimally invasive tools, that will allow doctors to make better informed decisions in caring for children with vasculitis. Through this study, we will also develop internet-based tools which will help doctors all over the world in making diagnosis and treatment decisions in their own clinics. The collection of follow-up clinical data at multiple time points will allow us to study disease trajectories, treatment responses, and the outcomes in these children. In addition to collecting clinical information, biological samples will be taken from children with vasculitis and compared to adults with vasculitis, in order to better classify, diagnose and monitor children with the disease. As this will be the largest translational research initiative in childhood vasculitis, findings from this study will be communicated to the global healthcare community in order to improve the overall quality of care and health of children with vasculitis.

Principal Investigator

Dr Kathryn Bailey

Contact us

Email: childrensresearch@ouh.nhs.uk

IRAS number

113197