UK Multiple Sclerosis Register - No recruitment - database

Research summary

The UK MS Register is a ‘real world’ research database designed to increase our understanding of living with MS in the UK. Patients diagnosed with Multiple Sclerosis (MS) according to the McDonald Classification, aged 18 or older, and residing in the UK are eligible to join. We are open to new NHS Sites. Upon consent, a minimum data set can be easily added to our case return form via eCRF for the project. Subsequently, sites provide ongoing longitudinal follow-up data during any patient attendance.. This can potentially be in the form of annual review letter. Consent packs can be provided for in person consent, postal and e-Consent methodologies are also available. The Register team holds regular drop-in meetings and provides support for any issues raised by sites.. The second element of the study is the capture of Patient Reported Outcomes(PROs) directly from people with MS. This is via online portal and allows patients to get an overview of their disease and answer the six-monthly PROs. With more NHS sites on board, we will be able gather more clinical data about MS in your area and together with all our other sites carry out research into treatments, lifestyle, epidemiology, cognition, burden of disease and many other essential areas vital to the NHS and people living with MS in the UK.’ Site PIs become part of the UKMS Register research group so there is the option of academic recognition for data set completion.

Principal Investigator

Dr Matthew Craner

Contact us

Email: ana.cavey@ouh.nhs.uk

IRAS number

209558